KEYWORDS

Dementia, Caregivers, Technology, Self-care

REFERENCES

[1] World Health Organization, “Global action plan on the public health response to dementia 2017-2025,” World Health Organization, (2017)
[2] World Health Organization, Dementia: Key facts, (2019)
[3] H. Chertkow, “An action plan to face the challenge of dementia: international statement on dementia from IAP for health,” JPAD, vol.3, pp.207-212, (2018)
[4] Canadian Institute of Health Information, Dementia in Canada, (2018)
[5] B. Black, et al., “Unmet needs in community-living persons with dementia are common, often non-medical and related to patient and caregiver characteristics,” Int Psychogeriatr, vol.31, pp.1-12, (2019)
[6] C. Whitlatch and S. Orsulic-Jeras, “Meeting the informational, educational, and psychosocial support needs of persons living with dementia and their family caregivers,” Gerontologist, vol.58, pp.S58-S73, (2018)
[7] Xiong, G., et al., “The communication gap between the medical system and community resources for dementia-related behavioral symptom management: Family caregiver perspectives,” Prim Care Companion CNS Disorder, vol.20, no.2, (2018) DOI: 10.4088/pcc.17m02238(CrossRef)(Google Scholar)
[8] C. Morrisby, A. Joosten, and M. Ciccarelli, “Do services meet the needs of people with dementia and carers living in the community? A scoping review of the international literature,” Int Psychogeriatric, vol.30, pp.5-14, (2018)
[9] S. Weber, P. Pirraglia, and M. Kunik, “Use of services by community-dwelling patients with dementia: a systematic review,” Am J Alzheimer’s Dis Other Demen, vol.26, pp.195-204, (2011)
[10] L. Phillipson, S. Jones, and C. Magee, “A review of the factors associated with the non-use of respite services by carers of people with dementia: implications for policy and practice,” Health Soc Care Community, vol.22, pp.1-12, (2014)
[11] L. Boots et al, “Qualitative study on needs and wishes of early-stage dementia caregivers: The paradox between needing and accepting help,” Int Psychogeriatr, vol.27, pp.927-936, (2015)
[12] R. Herron and M. Rosenberg, ““Not there yet”: Examining community support from the perspective of people with dementia and their partners in care,” Soc Sci Med, vol.173, pp.81-87, (2017)
[13] A. Macleod, et al., ““There isn't an easy way of finding the help that's available” Barriers and facilitators of service use among dementia family caregivers: A qualitative study,” Int psychogeriatrics, vol.29, no.5, pp.765-776, (2017) DOI: 10.1017/S1041610216002532(CrossRef)(Google Scholar)
[14] K. Robinson, K. Buckwalter and D. Reed., “Differences between dementia caregivers who are users and nonusers of community services,” Public Health Nurs, vol.30, pp.501-510, (2013)
[15] H. Brodaty, “Why caregivers of people with dementia and memory loss don't use services,” Int J Geriatr Psychiatry, vol.20, pp.537-546, (2005)
[16] J. Bryant, “Characteristics of the informal caregiver: An integrative literature review,” Walden Dissertations and Doctoral Studies, (2016)
[17] J. Millenaar, et al., “The care needs and experiences with the use of services of people with young‐onset dementia and their caregivers: A systematic review,” Int J Geriatric Psychiatry, vol.31, no.12, pp.1261-1276, (2016) DOI: 10.1002/gps.4502(CrossRef)(Google Scholar)
[18] J. Røsvik, et al., “Interventions to enhance access to and utilization of formal community care services for home dwelling persons with dementia and their informal careers, A scoping review,” Aging Ment Health, vol.23, pp.1-12 (2019)
[19] B. Suehs, B., et al., “Household members of persons with Alzheimer’s disease: Health conditions, healthcare resource use, and healthcare costs,” J Am Geriatr Soc, vol.62, pp.435-441, (2014)
[20] A. Koyama, A., “Mental health among younger and older caregivers of dementia patients,” psychogeriatrics, vol.17, pp.108-114, (2017)
[21] P. Cuijpers, “Depressive disorders in caregivers of dementia patients: A systematic review,” Aging Ment Health, vol.9, pp.325-330, (2005)
[22] L. Contador, et al., “Prediction of burden in family caregivers of patients with dementia: A perspective of optimism based on generalized expectancies of control,” Aging Ment Health, vol.16, pp.675-682, (2012)
[23] Y. Liu, Y., K. Kim, and S. Zarit, “Health trajectories of family caregivers: Associations with care transitions and adult day service use,” J Aging Health, vol.27, pp.686-710, (2015)
[24] L. Boots, et al., “A systematic review of Internet‐based supportive interventions for caregivers of patients with dementia,” Int J Geriatr Psychiatry, vol.29, pp.331-344, (2014)
[25] F. Meichsner, C. Theurer and G. Wilz, “Acceptance and treatment effects of an internet‐delivered cognitive‐behavioral intervention for family caregivers of people with dementia: A randomized‐controlled trial,” J Clin Psycho, vol.75, pp.594-613, (2019)
[26] J. Hopwood, et al., “Internet-based interventions aimed at supporting family caregivers of people with dementia: Systematic review,” J Med Internet Res, vol.20, no.6, pp.e216, (2018) DOI: 10.2196/jmir.9548(CrossRef)(Google Scholar)
[27] G. D’Onofrio, et al., “Information and communication technologies for the activities of daily living in older patients with dementia: A systematic review,” J Alzheimers Dis, vol.57, pp.927-935, (2017)
[28] D. Parker Oliver, et al., “The effect of internet group support for caregivers on social support, self-efficacy, and caregiver burden: a meta-analysis,” Telemed E-Health, vol.23, pp.621-629, (2017)
[29] E. Chiauzzi, C. Rodarte, and P. DasMahapatra, “Patient-centered activity monitoring in the self-management of chronic health conditions,” BMC Med, 13, article no.77, (2015)
[30] Wang, K., G. Chen, and H. Chen, “Understanding technology adoption behavior by older adults,” Soc Behav Pers, vol.46, pp.801-814, (2018)
[31] V. Braun, V. and V. Clarke, “Using thematic analysis in psychology,” Qual Res Psychol 2006, vol.3, pp.77-101, (2006)
[32] Y. Lincoln and E. Guba, “But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation,” In DD Williams, ed. Naturalistic Evaluation, Jossey-Bass, San Francisco, CA., pp.73-84, (1985)
[33] J. García-Casal, et al., “Computer-based cognitive interventions for people living with dementia: a systematic literature review and meta-analysis,” Aging Ment Health, vol.21, pp.454-467, (2017)
[34] A. Leggett, A., et al., “What hath night to do with sleep?: The caregiving context and dementia caregivers’ nighttime awakenings,” Clin Gerontol, vol.41, pp.158-166, (2018)
[35] G. Medic, M. Wille, and M. Hemels, “Short and long-term health consequences of sleep disruption,” Nat Sci Sleep, vol.9, pp.151, (2017)
[36] Ancoli-Israel, S. and M. Vitiello, “Sleep in dementia,” Am J Geriatr Psychiatry, vol.14, pp.91, (2006)
[37] L. Kidd, J. Zauszniewski and D. Morris, “Benefits of a poetry writing intervention for family caregivers of elders with dementia,” Issues Ment Health Nurs, vol.32, pp.598-604, (2011)
[38] [M. McCabe, E. You, and G. Tatangelo, “Hearing their voice: A systematic review of dementia family caregivers’ needs,” Gerontologist, vol.56, pp.e70-e88, (2016)
[39] K. Peterson, et al., “In the Information Age, do dementia caregivers get the information they need? Semi-structured interviews to determine informal caregivers’ education needs, barriers, and preferences,” BMC Geriatr 1-13, pp.164, (2016)
[40] C. Hu, et al., “Reducing caregiver stress with internet-based interventions: A systematic review of open-label and randomized controlled trials,” J Am Med Inform Assn, vol.22, pp.e194-e209, (2014)

CITATION